Bueno, son las 7:20 a.m. y nadie salio a hablarnos anoche! Gloria a Dios! Finalmente nos durmimos a las 2:00 de la manana y nos levantamos a las 6:30 a.m. El primer informe oficial de cada dia no es hasta entre mediodia y las dos de la tarde. La unica razon que nos dirian algo antes es que si hay algun problema o si han decidido hacer algun estudio...por ejemplo, el cateterismo o la tomografia. En cuanto nosotros sepamos algo, yo les aviso! Si no escuchan nada....seguimos confiando que alli van las cosas y que el Senor esta moviendose en su poder. Seguimos abrazados en los brazos del Senor por medio de sus oraciones. Muchas gracias!
Thursday, September 5, 2013
Thursday Morning Report
Well, it is 7:18 a.m. and nobody came out to talk to us in the night! We finally fell asleep a little after 2:00 a.m. and got up at 6:30 a.m. The first official report they give us everyday is supposed to happen between noon and 2 p.m. The only reason they would come out before that is if something has gotten worse or if they have decided to do some kind of test, for example, the heart cath or the MRI. As soon as I know anything I will let you know! If you don't hear from me.....we trust that all is well and the Lord is moving in His power! We continued cradled in His arms through your prayers...thank you!
Recent Posts from facebook
Posted
by Dad (Dave) from Julie, a series of 3 posts from facebook.....
____________________________________
Have
you ever played Candy Land? When I was a little girl playing Candy
Land with my brother and I was my father's parental sacrifice! Then,
when I became a Mom, Candy Land was the ONLY board game our daughter
Martha would play for over a year (and she played it many times a
day) when she was about 6 years old. In Candy Land there are some
special squares that are swamp squares. These colored squares have a
block dot in the middle of them. (See accompanying picture). If you
land on one of those squares you are stuck in the swamp and must stay
there until you happen to choose a card the color of that square. Do
you know how many turns it can take to, for example, pull a red card
to get out of the red swamp?
Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in!
We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!
We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!
Our biggest prayer request? May God be glorified!
Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in!
We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!
We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!
Our biggest prayer request? May God be glorified!
____________________________
Emergency
prayer request: Danny is not doing well. His oxygen saturation
(level) dropped way down today despite the fact that he is on the
ventilator at its full settings. His heart rate is increasing (from
90 to 144 about an hour and a half ago) and his heart pressure was
dropping. They started his heart pressure med again. He is very
asleep but should be very awake because he has almost no sedation
medication right now. They don't know why: the ecosonogram and x-rays
show nothing. They suspect a possible blood clot, but don't know
where. If his oxygenation keeps going down they will do a heart cath
to look for the blood clot inside. Because he isn't able to wake up
they believe it may be a blood clot in his brain, they need to do an
MRI but that is too risky vs the benefit for now. So, throughout the
night the doctor will be observing him: if the oxygen goes down, time
for a heart cath. If he can't wake up, time for an MRI. If it is a
blood clot and it gets stuck, then Danny will get to see Jesus before
us! Please call out to our Lord and Savior, the perfect Healer, on
Danny's behalf. We trust the Lord. We love the Lord. We will serve
the Lord. But, we will call out to Him until He tells us to stop!
Thank you!
_ucho en la tarde aunque el ventilador esta a todo lo que da.
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
________________________________________
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
________________________________________
From
Victor: One time the little kids were talking about what they wanted
to be when they grew up. I was just watching and listening...they
didn't even know that I was there. Danny said that he wanted to be a
pastor. I prayed and asked God to use him to preach to the people as
a pastor. But, in these last 27 days, thanks to the fact that Daniel
has been here at the hospital, there have been 7 people
who have accepted Jesus Christ; we have given out about 50 Gospels of
John with the plan of salvation inside and 15 New Testaments. Danny
doesn't know that, but even now his life is leading others to the
Lord. About two hours ago, I went in to see him and I prayed with
him. Even though he didn't move he did squeeze my hand. I leaned down
to his ear and told him: "Danny, I'm Papa. (That's when he
squeezed my hand.)" I told him that his siblings were waiting
for him at home, but that if it was time to go and be with Jesus that
he would wait for us there. We will keep praying....asking God, that
whatever His will may be, that He would be glorified!
Wednesday night, September 4, 2013/miercoles por la noche, 4 de septiembre, 2013
Emergency prayer request: Danny is not doing well. His oxygen saturation (level) dropped way down today despite the fact that he is on the ventilator at its full settings. His heart rate is increasing (from 90 to 144 about an hour and a half ago) and his heart pressure was dropping. They started his heart pressure med again. He is very asleep but should be very awake because he has almost no sedation medication right now. They don't know why: the ecosonogram and x-rays show nothing. They suspect a possible blood clot, but don't know where. If his oxygenation keeps going down they will do a heart cath to look for the blood clot inside. Because he isn't able to wake up they believe it may be a blood clot in his brain, they need to do an MRI but that is too risky vs the benefit for now. So, throughout the night the doctor will be observing him: if the oxygen goes down, time for a heart cath. If he can't wake up, time for an MRI. If it is a blood clot and it gets stuck, then Danny will get to see Jesus before us! Please call out to our Lord and Savior, the perfect Healer, on Danny's behalf. We trust the Lord. We love the Lord. We will serve the Lord. But, we will call out to Him until He tells us to stop! Thank you!
From Victor: One time the little kids were talking about what they wanted to be when they grew up. I was just watching and listening...they didn't even know that I was there. Danny said that he wanted to be a pastor. I prayed and asked God to use him to preach to the people as a pastor. But, in these last 27 days, thanks to the fact that Daniel has been here at the hospital, there have been 7 people who have accepted Jesus Christ; we have given out about 50 Gospels of John with the plan of salvation inside and 15 New Testaments. Danny doesn't know that, but even now his life is leading others to the Lord. About two hours ago, I went in to see him and I prayed with him. Even though he didn't move he did squeeze my hand. I leaned down to his ear and told him: "Danny, I'm Papa. (That's when he squeezed my hand.)" I told him that his siblings were waiting for him at home, but that if it was time to go and be with Jesus that he would wait for us there. We will keep praying....asking God, that whatever His will may be, that He would be glorified!
Peticion de oracion de emergencia: Danny no va bien. Su saturacion de oxigeno bajo mucho en la tarde aunque el ventilador esta a todo lo que da.
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
De parte de Victor: Una vez los ninos pequenos estaban platicando entre si acerca de lo que quieran ser de grandes. Yo estaba cerca escuchando, pero ni se percataron de mi presencia. Danny dijo que queria ser pastor. Yo ore y le pedi a Dios que lo usara para predicarle a la gente como pastor. Pero, en estos 27 dias de estar en el hospital, han habido 7 personas que han aceptado a Cristo, 50 personas recibieron una copia del Evangelio de Juan con el plan de salvacion y 15 Nuevos Testamentos fueron regalados. Danny no sabe de eso pero debido a su vida ya hay gente salva y escuchando del amor de Cristo. Yo entre a verlo hace unas 2 horas y aunque no se movia me apreto la mano. Me acerque a su oido y le dije: "Danny, soy papa." Fue entonces que me apreto la mano. Le dije que sus hermanos lo estaban esperando en casa pero que si era tiempo que ir con Jesus que el nos podria esperar alla. Seguiremos orando...pidiendole a Dios; lo que El decida que todo sea para su gloria.
From Victor: One time the little kids were talking about what they wanted to be when they grew up. I was just watching and listening...they didn't even know that I was there. Danny said that he wanted to be a pastor. I prayed and asked God to use him to preach to the people as a pastor. But, in these last 27 days, thanks to the fact that Daniel has been here at the hospital, there have been 7 people who have accepted Jesus Christ; we have given out about 50 Gospels of John with the plan of salvation inside and 15 New Testaments. Danny doesn't know that, but even now his life is leading others to the Lord. About two hours ago, I went in to see him and I prayed with him. Even though he didn't move he did squeeze my hand. I leaned down to his ear and told him: "Danny, I'm Papa. (That's when he squeezed my hand.)" I told him that his siblings were waiting for him at home, but that if it was time to go and be with Jesus that he would wait for us there. We will keep praying....asking God, that whatever His will may be, that He would be glorified!
Peticion de oracion de emergencia: Danny no va bien. Su saturacion de oxigeno bajo mucho en la tarde aunque el ventilador esta a todo lo que da.
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
De parte de Victor: Una vez los ninos pequenos estaban platicando entre si acerca de lo que quieran ser de grandes. Yo estaba cerca escuchando, pero ni se percataron de mi presencia. Danny dijo que queria ser pastor. Yo ore y le pedi a Dios que lo usara para predicarle a la gente como pastor. Pero, en estos 27 dias de estar en el hospital, han habido 7 personas que han aceptado a Cristo, 50 personas recibieron una copia del Evangelio de Juan con el plan de salvacion y 15 Nuevos Testamentos fueron regalados. Danny no sabe de eso pero debido a su vida ya hay gente salva y escuchando del amor de Cristo. Yo entre a verlo hace unas 2 horas y aunque no se movia me apreto la mano. Me acerque a su oido y le dije: "Danny, soy papa." Fue entonces que me apreto la mano. Le dije que sus hermanos lo estaban esperando en casa pero que si era tiempo que ir con Jesus que el nos podria esperar alla. Seguiremos orando...pidiendole a Dios; lo que El decida que todo sea para su gloria.
Wednesday morning, September 4, 2013/miercoles por la manana, 4 de septiembre, 2013
Have you ever played Candy Land? When I was a little girl playing Candy Land with my brother and I was my father's parental sacrifice! Then, when I became a Mom, Candy Land was the ONLY board game our daughter Martha would play for over a year (and she played it many times a day) when she was about 6 years old. In Candy Land there are some special squares that are swamp squares. These colored squares have a block dot in the middle of them. (See accompanying picture). If you land on one of those squares you are stuck in the swamp and must stay there until you happen to choose a card the color of that square. Do you know how many turns it can take to, for example, pull a red card to get out of the red swamp?
Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in!
We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!
We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!
Our biggest prayer request? May God be glorified!
Dia 27 en el hospital; Dia 24 desde cirugia; Dia 9 desde su traqueostomia
Hay un juego en los Estados Unidos que cada padre o madre de algun nino pequeno problablemente haya jugado. Se llama Candy Land (vean la foto de abajo). En este juego vas dando la vuelta al tablero al tomar una tarjeta en cada turno y mover tu munequito a un cuadro del color correspondiente. Es un juego divertido para los peques y algo monotono para los padres. Cuando yo era nina, era el sacrificio de mi padre jugar ese juego con nosotros....pero nos amaba, asi que jugaba! Ya como Mama, nuestra hija Martha fue adicta y reina de este juego cuando tenia unos 6 anos. Pedia jugarlo varias veces al dia por mas de un ano entero! Bueno, hay unos espacios especiales y odiosos que son del "pantano". Dentro del cuadro de color hay un punto negro. Si caes en uno de estos lugares, te quedas atascado hasta que vuelvas a sacar una tarjeta del color correcto. Sabes cuantos turnos te puede llevar en sacar una tarjeta, por ejempo del color rojo, para salir del pantano rojo?
Bueno, parece que Danny ya se quedo atascado en el pantano! Recientemente, conforme le han ido incrementando su formula por su tubo de alimentacion, el liquido drenando de su cavedad pulmonar tambien se ha ido incrementando debido a la condicion de quilotorax que desarrollo despues de su cirugia. Los doctores le habian quitado el medicamento para el quilotorax porque causaba arritmia cardiaca (un ritmo no normal del corazon), lo cual hizo necesario contectarlo al marcapasos. Pero, ahora que se nutricion se esta afectando, se ven con la necesidad de comenzar de nuevo su medicamento para el quilotorax, sabiendo que eso puede causar la arritmia de nuevo. Asi que estan entre: comenzar su medicamento para el quilotorax para mejorar su nutricion aunque cause arritmia en su corazon, o dejarlo sin el medicamento para que no haya arritmia, aunque su nutricion se estanque un poco. Lo ultimo que nos comentaron es que estan mas convencidos de comenzar el medicamento de nuevo porque su desnutricion parece que esta afectando su habilidad de quitarse del ventilador porque esta muy debil. (El lunes duro 8 horas sin el ventilador, pero ayer solo duro 5 horas.) Por ahora, el marcapasos corregira cualquier arritmia que se presenta. Pero, si la condicion de quilotorax persiste, puede llegar a ser necesario un marcapasos permanente. Estamos orando que nos salga la "tarjeta milagrosa" del color correcto para sacarnos del pantano!
Encontramos paz en el hecho de que Dios tiene el contro....que bien, porque yo no tengo idea de lo que El esta haciendo! Tendremos que seguir escogiendo el confiar....y podemos confiar porque Dios es bueno y Dios es amor y Dios tiene un plan perfectamente bueno para cada uno de nosotros (conforme Su definicion de bueno, no como nosotros lo definimos en nuestra existencia terrenal). Pero, yo confio en mi Papito Celestial!
Solo pudimos ver a Danny una vez ayer y por unos pocos 15 minutos! Vimos fotos de nuestras ultimas vacaciones en mi tableta y Danny movio sus labios para decirme: "Yo quiero ir alli!" Yo tambien, mi amor, yo tambien. Se veia algo triste y estaba respirando de manera bastante laborado, aunque tenia el ventilador puesto. Estoy tan agradecida de que Jesus siempre esta con el, aunque yo no pueda (y con nuestros otros hijos). Solo oro que Danny, y todos mis hijos, puedan sentir la presencia de Jesus con el (ellos), y si fuera necesario, pudiera(n) ver a Jesus y sus angeles que estan a su alrededor.
Nuestra peticion de oracion? Que Dios sea glorificado!
Tuesday, September 3, 2013
Day 26 in Hospital/Day 23 since surgery/Day 8 since Traqueotomy; Dia 26 en el Hospital/Dia 23 desde cirugia/Dia 8 desde la traqueostomia
The Latest: I had a wonderful weekend with the kids at home....very normal...Saturday chores, Sunday church, a soccer match (which my team lost:-(....but normal felt so wonderful! Victor is getting tired, but I think having is wife back to share the yellow metal bench with him has perked him up:-) Truly a wife and mother goes where her hubby and kids need her to be! (I learned that one from my Mom!) As for Danny, I only got to see him for 10 minutes in the entire day yesterday! Boo hoo! He was soooooo excited when I walked into the Cardiac Intensive Care Unit (CICU)! His little lips just mouthed "Mama, Mama" over and over again! He is in good spirits and we just pray he can be patient and persevere! We are in a definite holding pattern....which the Lord has confirmed over and over in the last few days as every single time I open the Bible, a devotional book, whatever....the verses always deal with waiting on the Lord!
Ventilator update: Danny lasted over 8 hours off the vent yesterday! Praise Jesus! They keep him on the vent at night so that he can rest and not have to work so hard all the time! They hope that he lasts the entire day today....12 hours or so! Let's pray him through it!
Heart update: He continues to be connected to the external pacemaker, but it is no longer on the constant setting...it is on a different setting where it only kicks in if his heart rate drops below 68. As of last night it hadn't kicked in for hours...and he is maintaining his own heart around 90 beats a minutes...perfect!
Nutrition: They believe that Danny's lack of being able to breathe on his own is due to exhaustion caused by malnutrition. Any of you who have ever seen Danny eat know that his malnutrition was not from a lack of food intake!:-) Dr. Palacios told us yesterday, which I already suspected, is that, due to his heart condition, although Danny ate and ate at home, his body was not able to fully use the nutrients. Right now, he continues on a nutritional feed via IV and his special formula through the breathing tube in his nose. They are giving him about 1000 calories a day. They would like to give him more, but when they up the amount of formula, then the drainage from his right lung increases, which is due to the chylotorax condition he developed after surgery, but the drainage isn't good. He was on a medication for the chylotorax, but they took him off of it because that med may have been contributing to his heart arrhythmia. So, they are debating how to handle the nutrition: put him back on the med so he can eat more, which he needs, but which may cause more heart arrhythima, or keep him off the med, but have to be more patient and slow-going at increasing his nutritional intake. May the Lord give them wisdom and may he heal the chylotorax, Daniel's inability to absorb proteins and lipids. The chylotorax is "temporary" (that word means something very different in this situation than the way I have defined it my whole life), but Danny will have to always live on a low-fat, low-protein diet.
I am at Ricardo and Susana's apartment, where I slept last night. Victor joined me for breakfast, but now I can hear him softly snoring while I work on the computer...maybe I should keep working...or just sneak out and go to the hospital? Love you all and thank you for your prayers!
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Lo mas recien: Pase un fin de semana maravilloso con los ninos...muy normal con quehaceres el sabado y a la iglesia el domingo, pero normal se sintio increible! Victor se esta cansando ya, pero el tener a su bella esposa a su lado en nuestro bank amarillo le ha dado nuevas fuerzas (creo!). Verdaderamente una esposa y madre esta donde su esposo y sus hijos la necesitan (Gracias, Mama, por ensenarme eso!)
En cuanto a Daniel, solo lo pude ver unos 10 minutos en todo el dia de ayer! Que triste! Pero, se puso muy emocionado al verme y sus labios movian diciendo "Mama, mama" muchas veces (aunque sigue sin voz.) El estaba de buen humor, pero pedimos sus oraciones que siga siendo paciente y perseverante! Estamos esperando, esperando y esperando....lo cual Dios ma ha estado confirmando ya que todo devocional, versiculo, et cetera que he leido en los ultimos dias incluyen muchos versiculos acera de esperar!
El ventilador: Danny duro mas de 8 horas ayer sin el ventilador, respirando solo por medio de su traqueostomia! Alabado sea el Senor! Le ponen el ventilador en la noche para que pueda descansar y no tiene que seguir trabajando. Hoy esperan que dure todo el dia respirando solo...unas 12 horas! Vamos a ayudarlo orando por el!
El corazon: Sigue conectado al marcapasos externo, pero ya no es constante. Solo se echa a andar cuando su ritmo cardiaco baja de 68 latidos por minuto. A noche tenia muchas horas sin que el marcapasos tuviera que trabajar y el solito esta manteniendo su ritmo en unos 90 latidos por minuto...un buen ritmo!
Nutricion: Creen que parte de la dificultad de Danny en respirar solo es porque esta muy desnutrido. Cualquier de Uds. que haya visto a Danny comer sabe que la desnutricion no viene de una falta de alimentos! El Dr. Palacios confirmo nuestra sospecha ayer, aunque Danny comia y comia su cuerpo no podia aprovechar los nutrientes debido a su defecto de corazon. Por ahora, le siguen poniendo nutrientes via su veina y su formula por medio de su tubo de alimentacion que va por su nariz a su estomago. Le estan dando unos 1000 calorias al dia. Quisieran darle mas, pero cuando aumentan la formula el liquido drenando de su area pulmonar tambien aumenta, debido a la condicion que tiene que se llama quilotorax, lo cual hace que su cuerpo no puede digerir proteinas ni lipidos. Le estaban dando un medicamento para el quilotorax, pero ese medicamento causa arritmias cardiacas (latidos irregulares). Por lo tanto, le quitaron el medicamento para el quilotorax para bajar la arritmia, pero entonces no le pueden aumentar su alimentacion. Asi que, estan tratando de decidir cual opcion es mejor: darle el medicamento para que le puedan alimentar mas (lo cual necesita para fortalecerse) y arriesgar la arritmia, o seguir sin el medicamento para no causar mas arritmias, pero tener que limitar su alimentacion. Nos dicen que el quilotorax es temporal (pero esa palabra significa algo muy diferente en esta situacion comparada con la manera en que siempre yo lo habia usado!). Nos dicen que Danny tendra que siempre tener una dieta baja en grasas y proteians.
Estoy ahorita en el departamento de Ricardo y Susana donde dormi anoche. Victor vino a desayunar conmigo, pero ahora lo escucho roncando mientras trabajo en la compu. A lo mejor debo seguir trabajando...o aun salir de secreto al hospital Los amamos a todos y gracias por sus oraciones!
Ventilator update: Danny lasted over 8 hours off the vent yesterday! Praise Jesus! They keep him on the vent at night so that he can rest and not have to work so hard all the time! They hope that he lasts the entire day today....12 hours or so! Let's pray him through it!
Heart update: He continues to be connected to the external pacemaker, but it is no longer on the constant setting...it is on a different setting where it only kicks in if his heart rate drops below 68. As of last night it hadn't kicked in for hours...and he is maintaining his own heart around 90 beats a minutes...perfect!
Nutrition: They believe that Danny's lack of being able to breathe on his own is due to exhaustion caused by malnutrition. Any of you who have ever seen Danny eat know that his malnutrition was not from a lack of food intake!:-) Dr. Palacios told us yesterday, which I already suspected, is that, due to his heart condition, although Danny ate and ate at home, his body was not able to fully use the nutrients. Right now, he continues on a nutritional feed via IV and his special formula through the breathing tube in his nose. They are giving him about 1000 calories a day. They would like to give him more, but when they up the amount of formula, then the drainage from his right lung increases, which is due to the chylotorax condition he developed after surgery, but the drainage isn't good. He was on a medication for the chylotorax, but they took him off of it because that med may have been contributing to his heart arrhythmia. So, they are debating how to handle the nutrition: put him back on the med so he can eat more, which he needs, but which may cause more heart arrhythima, or keep him off the med, but have to be more patient and slow-going at increasing his nutritional intake. May the Lord give them wisdom and may he heal the chylotorax, Daniel's inability to absorb proteins and lipids. The chylotorax is "temporary" (that word means something very different in this situation than the way I have defined it my whole life), but Danny will have to always live on a low-fat, low-protein diet.
I am at Ricardo and Susana's apartment, where I slept last night. Victor joined me for breakfast, but now I can hear him softly snoring while I work on the computer...maybe I should keep working...or just sneak out and go to the hospital? Love you all and thank you for your prayers!
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You can do it, Danny! Tu puedes, Daniel!
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Lo mas recien: Pase un fin de semana maravilloso con los ninos...muy normal con quehaceres el sabado y a la iglesia el domingo, pero normal se sintio increible! Victor se esta cansando ya, pero el tener a su bella esposa a su lado en nuestro bank amarillo le ha dado nuevas fuerzas (creo!). Verdaderamente una esposa y madre esta donde su esposo y sus hijos la necesitan (Gracias, Mama, por ensenarme eso!)
En cuanto a Daniel, solo lo pude ver unos 10 minutos en todo el dia de ayer! Que triste! Pero, se puso muy emocionado al verme y sus labios movian diciendo "Mama, mama" muchas veces (aunque sigue sin voz.) El estaba de buen humor, pero pedimos sus oraciones que siga siendo paciente y perseverante! Estamos esperando, esperando y esperando....lo cual Dios ma ha estado confirmando ya que todo devocional, versiculo, et cetera que he leido en los ultimos dias incluyen muchos versiculos acera de esperar!
El ventilador: Danny duro mas de 8 horas ayer sin el ventilador, respirando solo por medio de su traqueostomia! Alabado sea el Senor! Le ponen el ventilador en la noche para que pueda descansar y no tiene que seguir trabajando. Hoy esperan que dure todo el dia respirando solo...unas 12 horas! Vamos a ayudarlo orando por el!
El corazon: Sigue conectado al marcapasos externo, pero ya no es constante. Solo se echa a andar cuando su ritmo cardiaco baja de 68 latidos por minuto. A noche tenia muchas horas sin que el marcapasos tuviera que trabajar y el solito esta manteniendo su ritmo en unos 90 latidos por minuto...un buen ritmo!
Nutricion: Creen que parte de la dificultad de Danny en respirar solo es porque esta muy desnutrido. Cualquier de Uds. que haya visto a Danny comer sabe que la desnutricion no viene de una falta de alimentos! El Dr. Palacios confirmo nuestra sospecha ayer, aunque Danny comia y comia su cuerpo no podia aprovechar los nutrientes debido a su defecto de corazon. Por ahora, le siguen poniendo nutrientes via su veina y su formula por medio de su tubo de alimentacion que va por su nariz a su estomago. Le estan dando unos 1000 calorias al dia. Quisieran darle mas, pero cuando aumentan la formula el liquido drenando de su area pulmonar tambien aumenta, debido a la condicion que tiene que se llama quilotorax, lo cual hace que su cuerpo no puede digerir proteinas ni lipidos. Le estaban dando un medicamento para el quilotorax, pero ese medicamento causa arritmias cardiacas (latidos irregulares). Por lo tanto, le quitaron el medicamento para el quilotorax para bajar la arritmia, pero entonces no le pueden aumentar su alimentacion. Asi que, estan tratando de decidir cual opcion es mejor: darle el medicamento para que le puedan alimentar mas (lo cual necesita para fortalecerse) y arriesgar la arritmia, o seguir sin el medicamento para no causar mas arritmias, pero tener que limitar su alimentacion. Nos dicen que el quilotorax es temporal (pero esa palabra significa algo muy diferente en esta situacion comparada con la manera en que siempre yo lo habia usado!). Nos dicen que Danny tendra que siempre tener una dieta baja en grasas y proteians.
Estoy ahorita en el departamento de Ricardo y Susana donde dormi anoche. Victor vino a desayunar conmigo, pero ahora lo escucho roncando mientras trabajo en la compu. A lo mejor debo seguir trabajando...o aun salir de secreto al hospital Los amamos a todos y gracias por sus oraciones!
Sunday, September 1, 2013
Sunday Evening/Domingo por la Tarde
The crusade team left a couple of hours ago on a weeklong EMMC without Victor at the helm! Victor continues faithful at his hospital post...I am finishing up my weekend with the kids...and Adrian just left with the EMMC team to lead this week's crusade! Please keep them all in your prayers...including the 9 member team from the U.S. that will be joining the them, as well as the local volunteers from Guerrero! Besides leading his first weeklong crusade, Adrian is having to do it without his wife at his side....Vero stayed at home to help hold down the Ranch since I head back to the hospital tomorrow....even Rosa stayed behind to cook here! It was wonderful to sing at church this morning...I had been missing that the last several weeks and seeing our brothers and sisters in Christ, hearing their words of encouragement and getting their hugs!
El equipo de las caravanas se fue hace un par de horas para una caravana de una semana a Guerrero...sin Victor al frente! Victor sigue fiel en su puesto en el hospital...yo estoy terminando mi fin de semana con los ninos....y Adrian se acaba de ir con el equipo para la caravana! Por favor, mantenganlos todos en sus oraciones...incluyendo los 9 voluntarios que vienen de los Estados Unidos y los voluntarios de Guerrero! Ademas de dirigir su primera caravana foranea y de toda una semana, Adrian lo tiene que hacer sin la ayuda de su esposa, ya que Vero se quedo aqui en la casa para ayudar porque regreso al hospital manana. Aun la Hma. Rosa se quedo para seguir cocinando aqui. Fue de mucha bendicion cantar al Senor hoy en la iglesia...ya me hacia mucha falta...ademas de poder ver a nuestros hermanos y hermanas en Cristo, escuchando sus palabras de animo y recibir sus abrazos!
El equipo de las caravanas se fue hace un par de horas para una caravana de una semana a Guerrero...sin Victor al frente! Victor sigue fiel en su puesto en el hospital...yo estoy terminando mi fin de semana con los ninos....y Adrian se acaba de ir con el equipo para la caravana! Por favor, mantenganlos todos en sus oraciones...incluyendo los 9 voluntarios que vienen de los Estados Unidos y los voluntarios de Guerrero! Ademas de dirigir su primera caravana foranea y de toda una semana, Adrian lo tiene que hacer sin la ayuda de su esposa, ya que Vero se quedo aqui en la casa para ayudar porque regreso al hospital manana. Aun la Hma. Rosa se quedo para seguir cocinando aqui. Fue de mucha bendicion cantar al Senor hoy en la iglesia...ya me hacia mucha falta...ademas de poder ver a nuestros hermanos y hermanas en Cristo, escuchando sus palabras de animo y recibir sus abrazos!
Sunday Danny Update/ Lo mas reciente de Daniel - domingo
Sorry for the lack of posts! I came home to the Ranch on Fri. evening and will head back to the hospital Mon. morning...and anybody who has been at the Ranch know what life is like here! Victor continues holding down the fort at the hospital. Danny update: He continues to be in Cardiac Intensive Care, although very small progresses are being made. He still uses the ventilator all night, but he is gradually withstanding longer and longer times without the ventilator during the day. On Friday he lasted over 3 hours with the ventilator and even longer yesterday, although I'm not sure how many ours. He has a confirmed heart arrhythmia, but the doctors believe that it may be due to the scar on his heart from surgery being somewhat swollen. So, they have put him on a medicine to reduce the swelling and are hoping that that will take care of the arrhythmia. He continues using an external pacemaker, but there are times that they take him off of it and his heart beat and pressure hold up really well, and other times they take him off the pacemaker and he just plummets. So, they are hoping this is a temporary problem. As for nutrition, he is on his special formula via the feeding tube through his nose to this stomach and also continues receiving a special nutritional formula through his IV. He has been in good spirits and loves our/Victor's visits because they let us take in my tablet, so we can play Angry Birds, read books, look at family pictures and listen to music. The doctors have also been good about giving us more time with Danny....up to two hours a day! We made him a laminated picture board so that he can communicate more effectively his needs and wants, but according to the doctor they only picture he ever points at is the "I want to go home" picture! Thanks for your continued prayers....we pray that he gets strengthened each day to get off the ventilator and that his heart arrhythmia will clear up.
Lo siento por la falta de noticias....me vine a la casa el viernes por la tarde y me regreso al hospital el lunes por la manana. Victor sigue en el hospital con Daniel. En cuanto a Daniel...sigue en terapia intensiva de cardiologia aunque esta haciendo algo de progreso poco a poco. Sigue usando el ventilador toda la noche, pero en el dia esta aguantando mas y mas horas sin el ventilador, respirando por medio de su traqueo. El viernes duro mas de 3 horas y el sabado hasta mas. En cuanto a su corazon, los doctores confirmaron su arritmia y sigue con el marcapasos externo. Creen los doctores que es una condicion temporal causado por la cicatrizacion de la cirugia de su corazon que sigue un poco inflamado por dentro. Asi que, le estan dando un medicamento para desinflamar y esperan que la arritmia se resuelva solo. En cuanto a nutricion, le estan dando su formula especial por tubo en la nariz hasta el estomago y tambien otros nutrientes por la veina. Ha estado de buen humor y disfrutando nuestras visitas. Los doctores han sido buenos en permitirnos estar con Daniel hasta 2 horas por dia y dejarnos meter mi tableta...asi que podemos leer libros, ver fotos de la familia, jugar Angry Birds, escuchar musica, et cetera. Le hicimos a Daniel un tapetito con dibujos para que pueda expresar sus necesidades y deseos, ya que no puede hablar. Pero, segun el doctor, el unico dibujo al cual apunta Daniel es la de: "Quiero irme a casa." Gracias por sus oraciones...seguimos orando que se haga mas fuerte cada dia para dejar por completo el ventilador y que se resuelva lo de su arritmia. Que Dios les bendiga!
Lo siento por la falta de noticias....me vine a la casa el viernes por la tarde y me regreso al hospital el lunes por la manana. Victor sigue en el hospital con Daniel. En cuanto a Daniel...sigue en terapia intensiva de cardiologia aunque esta haciendo algo de progreso poco a poco. Sigue usando el ventilador toda la noche, pero en el dia esta aguantando mas y mas horas sin el ventilador, respirando por medio de su traqueo. El viernes duro mas de 3 horas y el sabado hasta mas. En cuanto a su corazon, los doctores confirmaron su arritmia y sigue con el marcapasos externo. Creen los doctores que es una condicion temporal causado por la cicatrizacion de la cirugia de su corazon que sigue un poco inflamado por dentro. Asi que, le estan dando un medicamento para desinflamar y esperan que la arritmia se resuelva solo. En cuanto a nutricion, le estan dando su formula especial por tubo en la nariz hasta el estomago y tambien otros nutrientes por la veina. Ha estado de buen humor y disfrutando nuestras visitas. Los doctores han sido buenos en permitirnos estar con Daniel hasta 2 horas por dia y dejarnos meter mi tableta...asi que podemos leer libros, ver fotos de la familia, jugar Angry Birds, escuchar musica, et cetera. Le hicimos a Daniel un tapetito con dibujos para que pueda expresar sus necesidades y deseos, ya que no puede hablar. Pero, segun el doctor, el unico dibujo al cual apunta Daniel es la de: "Quiero irme a casa." Gracias por sus oraciones...seguimos orando que se haga mas fuerte cada dia para dejar por completo el ventilador y que se resuelva lo de su arritmia. Que Dios les bendiga!
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