Thursday, September 5, 2013

Recent Posts from facebook

Posted by Dad (Dave) from Julie, a series of 3 posts from facebook.....
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Have you ever played Candy Land? When I was a little girl playing Candy Land with my brother and I was my father's parental sacrifice! Then, when I became a Mom, Candy Land was the ONLY board game our daughter Martha would play for over a year (and she played it many times a day) when she was about 6 years old. In Candy Land there are some special squares that are swamp squares. These colored squares have a block dot in the middle of them. (See accompanying picture). If you land on one of those squares you are stuck in the swamp and must stay there until you happen to choose a card the color of that square. Do you know how many turns it can take to, for example, pull a red card to get out of the red swamp?

Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in!

We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!

We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!

Our biggest prayer request? May God be glorified!
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Emergency prayer request: Danny is not doing well. His oxygen saturation (level) dropped way down today despite the fact that he is on the ventilator at its full settings. His heart rate is increasing (from 90 to 144 about an hour and a half ago) and his heart pressure was dropping. They started his heart pressure med again. He is very asleep but should be very awake because he has almost no sedation medication right now. They don't know why: the ecosonogram and x-rays show nothing. They suspect a possible blood clot, but don't know where. If his oxygenation keeps going down they will do a heart cath to look for the blood clot inside. Because he isn't able to wake up they believe it may be a blood clot in his brain, they need to do an MRI but that is too risky vs the benefit for now. So, throughout the night the doctor will be observing him: if the oxygen goes down, time for a heart cath. If he can't wake up, time for an MRI. If it is a blood clot and it gets stuck, then Danny will get to see Jesus before us! Please call out to our Lord and Savior, the perfect Healer, on Danny's behalf. We trust the Lord. We love the Lord. We will serve the Lord. But, we will call out to Him until He tells us to stop! Thank you!


_ucho en la tarde aunque el ventilador esta a todo lo que da. 
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
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From Victor: One time the little kids were talking about what they wanted to be when they grew up. I was just watching and listening...they didn't even know that I was there. Danny said that he wanted to be a pastor. I prayed and asked God to use him to preach to the people as a pastor. But, in these last 27 days, thanks to the fact that Daniel has been here at the hospital, there have been 7 people who have accepted Jesus Christ; we have given out about 50 Gospels of John with the plan of salvation inside and 15 New Testaments. Danny doesn't know that, but even now his life is leading others to the Lord. About two hours ago, I went in to see him and I prayed with him. Even though he didn't move he did squeeze my hand. I leaned down to his ear and told him: "Danny, I'm Papa. (That's when he squeezed my hand.)" I told him that his siblings were waiting for him at home, but that if it was time to go and be with Jesus that he would wait for us there. We will keep praying....asking God, that whatever His will may be, that He would be glorified!

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