Thursday, September 5, 2013

Some Good News!

Dr. Palacios just came out from seeing Daniel and he said things are looking a bit better. He feels that most of Daniel's problems have been related to his breathing. After the trach, due to Danny's malnourished state, he did not heal tightly around the canula (the tube in this throat), so there was oxygen leaking out of that. That may have led to the other heart issues. Right now, with the ventilator going through his mouth, he is oxygenating much better and his heart is beating regularly and well. Praise Jesus! He is totally sedated. Since he is "stable" they are going to just leave him like that today and not move anything. They are considering doing a heart cath tomorrow to check his heart function and see what is going wrong on the inside, but are going to give him today to just rest. There is always a risk of another heart attack, but we are in a better position than just a few hours ago. Praise, praise, praise Jesus! He is soooooo merciful! We still trust Him to do His perfect will!

El Dr. Palacios acaba de salir de ver a Daniel y dice que los cosas se ven un poco mejor. El siente que los problemas de Daniel estan relacionados con su oxigenacion. Despues del traqueo, debido a su malnutricion, no se cerro la herida alrededor de la canula (el tubo que entra en su garganta), y habia oxigeno fugandose por alli. Esto puede haber causado algunos problemas con su corazon. Por ahora, con el ventilador por medio de su boca esta oxigenandose mucho mejor y su corazon esta en un ritmo normal. Gloria a Dios! Danny esta totalmente sedado. Ya que esta "estable", no le van a mover nada hoy para ver como evoluciona. Estan considerando hacer un cateterismo manana para checar su corazon y ver si encuentran lo que esta fallando adentro, pero le van a dar hoy para descansar. Siempre hay un riesgo de otro paro en cualquier momento, pero estamos ahorita un poco mejor que hace un par de horas. Alaben, alaben, alaben a Jesus! Es tan misericordioso! Todavia le confiamos para hacer su perfecta voluntad.

Some Good News

Two praises: Last night, after getting the bad report on Daniel, several other Moms came around to hear how things were going and hear Daniel's story. Four people accepted Christ last night: two Moms, a Grandma and a security guard!

Secondly, this morning when Danny went into cardiac arrest the doctors "just happened" to be at his bedside! All the CICU doctors were together doing their rounds and they watched his oxygen go down and realized the moment he went into cardiac arrest. They immediately started chest compressions....so the cardiac arrest was what they called "assisted". His brain was never without oxygen because they were right there. God is soooooo good!

Nos dijeron hace poco los doctores que Daniel esta un poco mas estable ahora que despues de sus cuatro paros cardiacos (no fueron simplemente paros respiratorios). Las cosas, por supuesto, pueden cambiar de un momento para el otro..solo queriamos decirles lo mas reciente! Victor y yo estamos aqui en sala de espera del hospital; los ninos estan en casa con mi mama y Vero. Los ninos saben lo que esta pasando y cancelamos escuela para hoy. Por favor, sigan orando por mi Mama, Vero y los ninos! Hemos llorado, hemos reido, orando?...lo hacemos con cada respirar. Como puedo expresar nuestros sentimientos? Sabemos la gravedad de la situacion en que nos encontramos y hemos pedido que si los doctores lo tienen que volver a reanimar que estemos presentes y que si ellos determinan que ya no se puede hacer nada que me lo pasen...lo quiero en mis brazos. Pero, NO HEMOS DEJADO DE CREER EN LA TOTAL E INDISCUTIBLE PODER DE DIOS DE LEVANTAR A DANNY Y SACARLO DE AQUI CORRIENDO! Dios es perfecto, Dios es bueno...que se haga su voluntad!

Danny Critical


Danny is extremely critical....he went into respiratory arrest four times this morning and was gone for a total of 16 minutes. Everytime they brought him back he was totally awake and aware, so they have sedated him. The doctors are clueless as to what is going on. He doesn't have clinical signs of a blood clot; they can't move him to do any testing; they are doing another ecosonogram right now, hoping that something shows up! The doctors haven't given up, Danny hasn't given up and they say we shouldn't either! They took out his trach and he is back on the ventilator through his mouth. We can't say thank you enough for your prayers!

Thursday Morning Report

Well, it is 7:18 a.m. and nobody came out to talk to us in the night! We finally fell asleep a little after 2:00 a.m. and got up at 6:30 a.m. The first official report they give us everyday is supposed to happen between noon and 2 p.m. The only reason they would come out before that is if something has gotten worse or if they have decided to do some kind of test, for example, the heart cath or the MRI. As soon as I know anything I will let you know! If you don't hear from me.....we trust that all is well and the Lord is moving in His power! We continued cradled in His arms through your prayers...thank you!


Bueno, son las 7:20 a.m. y nadie salio a hablarnos anoche! Gloria a Dios! Finalmente nos durmimos a las 2:00 de la manana y nos levantamos a las 6:30 a.m. El primer informe oficial de cada dia no es hasta entre mediodia y las dos de la tarde. La unica razon que nos dirian algo antes es que si hay algun problema o si han decidido hacer algun estudio...por ejemplo, el cateterismo o la tomografia. En cuanto nosotros sepamos algo, yo les aviso! Si no escuchan nada....seguimos confiando que alli van las cosas y que el Senor esta moviendose en su poder. Seguimos abrazados en los brazos del Senor por medio de sus oraciones. Muchas gracias!

Recent Posts from facebook

Posted by Dad (Dave) from Julie, a series of 3 posts from facebook.....
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Have you ever played Candy Land? When I was a little girl playing Candy Land with my brother and I was my father's parental sacrifice! Then, when I became a Mom, Candy Land was the ONLY board game our daughter Martha would play for over a year (and she played it many times a day) when she was about 6 years old. In Candy Land there are some special squares that are swamp squares. These colored squares have a block dot in the middle of them. (See accompanying picture). If you land on one of those squares you are stuck in the swamp and must stay there until you happen to choose a card the color of that square. Do you know how many turns it can take to, for example, pull a red card to get out of the red swamp?

Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in!

We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!

We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!

Our biggest prayer request? May God be glorified!
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Emergency prayer request: Danny is not doing well. His oxygen saturation (level) dropped way down today despite the fact that he is on the ventilator at its full settings. His heart rate is increasing (from 90 to 144 about an hour and a half ago) and his heart pressure was dropping. They started his heart pressure med again. He is very asleep but should be very awake because he has almost no sedation medication right now. They don't know why: the ecosonogram and x-rays show nothing. They suspect a possible blood clot, but don't know where. If his oxygenation keeps going down they will do a heart cath to look for the blood clot inside. Because he isn't able to wake up they believe it may be a blood clot in his brain, they need to do an MRI but that is too risky vs the benefit for now. So, throughout the night the doctor will be observing him: if the oxygen goes down, time for a heart cath. If he can't wake up, time for an MRI. If it is a blood clot and it gets stuck, then Danny will get to see Jesus before us! Please call out to our Lord and Savior, the perfect Healer, on Danny's behalf. We trust the Lord. We love the Lord. We will serve the Lord. But, we will call out to Him until He tells us to stop! Thank you!


_ucho en la tarde aunque el ventilador esta a todo lo que da. 
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.
Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!
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From Victor: One time the little kids were talking about what they wanted to be when they grew up. I was just watching and listening...they didn't even know that I was there. Danny said that he wanted to be a pastor. I prayed and asked God to use him to preach to the people as a pastor. But, in these last 27 days, thanks to the fact that Daniel has been here at the hospital, there have been 7 people who have accepted Jesus Christ; we have given out about 50 Gospels of John with the plan of salvation inside and 15 New Testaments. Danny doesn't know that, but even now his life is leading others to the Lord. About two hours ago, I went in to see him and I prayed with him. Even though he didn't move he did squeeze my hand. I leaned down to his ear and told him: "Danny, I'm Papa. (That's when he squeezed my hand.)" I told him that his siblings were waiting for him at home, but that if it was time to go and be with Jesus that he would wait for us there. We will keep praying....asking God, that whatever His will may be, that He would be glorified!

Wednesday night, September 4, 2013/miercoles por la noche, 4 de septiembre, 2013

Emergency prayer request: Danny is not doing well. His oxygen saturation (level) dropped way down today despite the fact that he is on the ventilator at its full settings. His heart rate is increasing (from 90 to 144 about an hour and a half ago) and his heart pressure was dropping. They started his heart pressure med again. He is very asleep but should be very awake because he has almost no sedation medication right now. They don't know why: the ecosonogram and x-rays show nothing. They suspect a possible blood clot, but don't know where. If his oxygenation keeps going down they will do a heart cath to look for the blood clot inside. Because he isn't able to wake up they believe it may be a blood clot in his brain, they need to do an MRI but that is too risky vs the benefit for now. So, throughout the night the doctor will be observing him: if the oxygen goes down, time for a heart cath. If he can't wake up, time for an MRI. If it is a blood clot and it gets stuck, then Danny will get to see Jesus before us! Please call out to our Lord and Savior, the perfect Healer, on Danny's behalf. We trust the Lord. We love the Lord. We will serve the Lord. But, we will call out to Him until He tells us to stop! Thank you!

From Victor: One time the little kids were talking about what they wanted to be when they grew up. I was just watching and listening...they didn't even know that I was there. Danny said that he wanted to be a pastor. I prayed and asked God to use him to preach to the people as a pastor. But, in these last 27 days, thanks to the fact that Daniel has been here at the hospital, there have been 7 people who have accepted Jesus Christ; we have given out about 50 Gospels of John with the plan of salvation inside and 15 New Testaments. Danny doesn't know that, but even now his life is leading others to the Lord. About two hours ago, I went in to see him and I prayed with him. Even though he didn't move he did squeeze my hand. I leaned down to his ear and told him: "Danny, I'm Papa. (That's when he squeezed my hand.)" I told him that his siblings were waiting for him at home, but that if it was time to go and be with Jesus that he would wait for us there. We will keep praying....asking God, that whatever His will may be, that He would be glorified!

Peticion de oracion de emergencia: Danny no va bien. Su saturacion de oxigeno bajo mucho en la tarde aunque el ventilador esta a todo lo que da. 
Sus latidos de corazon estan aumentando (de 90, lo normal, a 144 hace una hora y media y su presion arterial esta bajando. Ya le comenzaron su medicamento para la presion de nuevo. El esta muy dormido, pero deberia estar muy despierto porque tiene muy poco medicamento de sedacion. Los doctores no saben que esta pasando, solo que esta empeorando: sospechan un posible trombo, un coagulo de sangre. El ecosonograma y los rayos x no muestran nada. Lo van a estar observando durante la noche. Si su oxigenacion sigue bajando, tendran que hacer un cateterismo para buscar el coagulo por dentro. Si no lo pueden despertar, tendran que hacer una tomografia para buscar el coagulo en su cerebro.

Por favor, clamen a Dios por Daniel! Confiamos al Senor. Amamos al Senor. Serviremos al Senor. Pero, le clamaremos hasta que nos diga que no. Muchas gracias!


De parte de Victor: Una vez los ninos pequenos estaban platicando entre si acerca de lo que quieran ser de grandes. Yo estaba cerca escuchando, pero ni se percataron de mi presencia. Danny dijo que queria ser pastor. Yo ore y le pedi a Dios que lo usara para predicarle a la gente como pastor. Pero, en estos 27 dias de estar en el hospital, han habido 7 personas que han aceptado a Cristo, 50 personas recibieron una copia del Evangelio de Juan con el plan de salvacion y 15 Nuevos Testamentos fueron regalados. Danny no sabe de eso pero debido a su vida ya hay gente salva y escuchando del amor de Cristo. Yo entre a verlo hace unas 2 horas y aunque no se movia me apreto la mano. Me acerque a su oido y le dije: "Danny, soy papa." Fue entonces que me apreto la mano. Le dije que sus hermanos lo estaban esperando en casa pero que si era tiempo que ir con Jesus que el nos podria esperar alla. Seguiremos orando...pidiendole a Dios; lo que El decida que todo sea para su gloria.

Wednesday morning, September 4, 2013/miercoles por la manana, 4 de septiembre, 2013

Day 27 of Hospitalization; Day 24 since surgery; Day 9 since tracheostomy

Have you ever played Candy Land? When I was a little girl playing Candy Land with my brother and I was my father's parental sacrifice! Then, when I became a Mom, Candy Land was the ONLY board game our daughter Martha would play for over a year (and she played it many times a day) when she was about 6 years old. In Candy Land there are some special squares that are swamp squares. These colored squares have a block dot in the middle of them. (See accompanying picture). If you land on one of those squares you are stuck in the swamp and must stay there until you happen to choose a card the color of that square. Do you know how many turns it can take to, for example, pull a red card to get out of the red swamp?

Well, Danny landed on a swamp square and is stuck! Recently, as they have increased his nutritional intake to pull him out of his malnutrition, the drainage from his lungs has increased due to the chylotorax condition he developed after surgery. The doctors had taken him off the medication for the chylotorax because it was contributing to his heart arrhythmia which caused the need to be connected to the pacemaker. However, now that his nutrition is stalled, they need to start him on the chylotorax medication, but are risking the return of his heart arrhythmia. So, they are debating which is more important: meds for chylotorax to up his nutrition and risk heart arrhythmia, or no meds to prevent heart arrhythmia, but stall his nutrition. The last we heard they were leaning towards starting the med for chylotorax because his malnutrition seems to be contributing to the fact that he doesn't have the strength to get totally off the ventilator. (He lasted 8 hours on Mon. without the vent, but only 5 hours yesterday.) For now, the pacemaker will take care of any heart arrhythmia that would occur. However, if the chylotorax condition persists, and the heart arrhythmia returns with the use of the medication, then it may become necessary to implant a permanent pacemaker. We are praying for a miraculous "card of the right color" to get us out of the swamp we're stuck in! 

We are so glad God is in control because I certainly don't know what He is up to! We will just have to continue to choose to trust...and we can trust because God is good and God is love and God has a perfectly good plan for each of us (good as He defines it, not as we define it in our finite earthly existence). But, I trust my Heavenly Daddy!

We only got to see Danny once again yesterday and only for 15 minutes! We looked at vacation pictures and he mouthed to me: "I want to go there!" Yeah, I do too, buddy! He seemed rather sad and was breathing quite labored, although he was back on the vent. I am so glad Jesus is always with him even thought I can't be. I just pray that Danny can feel Jesus and even see him and his angels, if necessary!

Our biggest prayer request? May God be glorified!




Dia 27 en el hospital; Dia 24 desde cirugia; Dia 9 desde su traqueostomia

Hay un juego en los Estados Unidos que cada padre o madre de algun nino pequeno problablemente haya jugado. Se llama Candy Land (vean la foto de abajo). En este juego vas dando la vuelta al tablero al tomar una tarjeta en cada turno y mover tu munequito a un cuadro del color correspondiente. Es un juego divertido para los peques y algo monotono para los padres. Cuando yo era nina, era el sacrificio de mi padre jugar ese juego con nosotros....pero nos amaba, asi que jugaba! Ya como Mama, nuestra hija Martha fue adicta y reina de este juego cuando tenia unos 6 anos. Pedia jugarlo varias veces al dia por mas de un ano entero! Bueno, hay unos espacios especiales y odiosos que son del "pantano". Dentro del cuadro de color hay un punto negro. Si caes en uno de estos lugares, te quedas atascado hasta que vuelvas a sacar una tarjeta del color correcto. Sabes cuantos turnos te puede llevar en sacar una tarjeta, por ejempo del color rojo, para salir del pantano rojo?

Bueno, parece que Danny ya se quedo atascado en el pantano! Recientemente, conforme le han ido incrementando su formula por su tubo de alimentacion, el liquido drenando de su cavedad pulmonar tambien se ha ido incrementando debido a la condicion de quilotorax que desarrollo despues de su cirugia. Los doctores le habian quitado el medicamento para el quilotorax porque causaba arritmia cardiaca (un ritmo no normal del corazon), lo cual hizo necesario contectarlo al marcapasos. Pero, ahora que se nutricion se esta afectando, se ven con la necesidad de comenzar de nuevo su medicamento para el quilotorax, sabiendo que eso puede causar la arritmia de nuevo. Asi que estan entre: comenzar su medicamento para el quilotorax para mejorar su nutricion aunque cause arritmia en su corazon, o dejarlo sin el medicamento para que no haya arritmia, aunque su nutricion se estanque un poco. Lo ultimo que nos comentaron es que estan mas convencidos de comenzar el medicamento de nuevo porque su desnutricion parece que esta afectando su habilidad de quitarse del ventilador porque esta muy debil. (El lunes duro 8 horas sin el ventilador, pero ayer solo duro 5 horas.) Por ahora, el marcapasos corregira cualquier arritmia que se presenta. Pero, si la condicion de quilotorax persiste, puede llegar a ser necesario un marcapasos permanente. Estamos orando que nos salga la "tarjeta milagrosa" del color correcto para sacarnos del pantano! 

Encontramos paz en el hecho de que Dios tiene el contro....que bien, porque yo no tengo idea de lo que El esta haciendo! Tendremos que seguir escogiendo el confiar....y podemos confiar porque Dios es bueno y Dios es amor y Dios tiene un plan perfectamente bueno para cada uno de nosotros (conforme Su definicion de bueno, no como nosotros lo definimos en nuestra existencia terrenal). Pero, yo confio en mi Papito Celestial!

Solo pudimos ver a Danny una vez ayer y por unos pocos 15 minutos! Vimos fotos de nuestras ultimas vacaciones en mi tableta y Danny movio sus labios para decirme: "Yo quiero ir alli!" Yo tambien, mi amor, yo tambien. Se veia algo triste y estaba respirando de manera bastante laborado, aunque tenia el ventilador puesto. Estoy tan agradecida de que Jesus siempre esta con el, aunque yo no pueda (y con nuestros otros hijos). Solo oro que Danny, y todos mis hijos, puedan sentir la presencia de Jesus con el (ellos), y si fuera necesario, pudiera(n) ver a Jesus y sus angeles que estan a su alrededor.

Nuestra peticion de oracion? Que Dios sea glorificado!